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Pediatric Committee

Aim: To provide the structure to foster and further develop the pediatric GI components of the Rome foundation to cover aspects of education, research and patient care

Rationale: The importance of Disorders of Gut Brain Interactions (DGBI) in the pediatric population is well established. They have a prevalence of up to 30%, and the cost of care is significantly higher as compared to controls. DGBIs have a major impact in quality of life and function of those children. Importantly the presence of DGBIs in children may be associated with their persistence into adulthood. Therefore, a better understanding and treatment of DGBIs in children could have a major impact in the natural history of the disease and the cost to society.
Since the initial development of the pediatric Rome criteria in 1999 there has been a major increase in their recognition and research related to it.  The Rome foundation has been supportive and instrumental, in the development of pediatric criteria. It has already invested in the development of pediatric criteria, diagnostic, treatment algorithms, and relevant position papers. As a further sign of support, the board has expanded and now has a pediatric member. Using these developments as a launching point, it has become clear that it is now necessary to further expand the efforts in the pediatric field. This will foster more education, research and therapies into pediatric FGIDs. There is also a need for general practitioners, pediatricians, nurse practitioners, physician assistants and particularly pediatric GI specialists to be able to recognize the disorders and provide better therapy.
This subgroup of pediatric oriented members will allow more cross fertilization , will define priorities, and will help develop pediatric specific programs that will advance the field, and have an impact on the health of children with DGBIs.

The goals of the Committee are :

  1.  To be a resource to provide diagnostic and treatment recommendations to pediatric clinicians on Disorders of Gut Brain Interaction.
    1. The existent criteria need to be continuously validated and changed according to new studies, epidemiology and developments.
    2. The Committee will work on laying the ground and establish the process to define the pediatric needs for Rome V, and will be the main conduit to organize the Rome V pediatric committee.
    3. To provide Rome Foundation guidance on what pediatric clinicians need to better address patient needs and enable Rome to be a leader in the pediatric GI space.
  2. Keep the GI genius updated.
    1. Will review relevant literature and suggest updates as needed
    2. Work with the updating Committee. The liaison will be Dr Nurko
  3. Create courses to update physicians and other providers (nurse practitioner, PA, nurses) in the evaluation and treatment of children with FGIDs
    1. Design regional  CME courses using the model already established by the Rome foundation
    2. Collaborate with the psychogastroenterology group in the joint development of some  aspects of the courses
      1. Directed to Pediatric Gastroenterologists, pediatricians, nurse practitioners, PA
      2. Have specific components to appeal to pediatric psychologists
      3. Have specific components to appeal to dieticians
  4. To create videos on the best approach and interactions with these children and families
    1. Build on the current library
    2. Include other pediatric members in the training to lead pediatric work shops
  5. To provide expertise on pediatric questionnaires already created and to consider creation of new diagnostic questionnaires.
    1. Provide the necessary back up for the existing questionnaires
    2. Consider modification to existent tools
    3. Help and supervise the development of new questionnaires as needed
    4. Work directly with the questionnaire/marketing Rome committee
    5. Dr Nurko will be the contact person
  6. To create a page on Rome website dedicated to Pediatrics- education, research, information, products and opportunities to learn and engage.
    1. Will engage members to write content and develop the web site
  7. To be available to sponsors who work in pediatric space to answer questions or serve as KOL in related work.
    1. Create a subgroup of experts to help in the design of studies
  8. To provide opportunities for junior faculty to participate in Rome Foundation projects and activities.
    1. Development of mentorship programs for young physicians.
      1. This may include visiting opportunities
      2. Development of courses and educational tools
      3. Development of research opportunities for young physicians.
      4. Possibly raise money and earmark a Rome grant for pediatrics. This may need to be done together with the CDHNF foundation
  9. To initiate a Rome Visiting Scholar program for Pediatrics.
    1. Find the funds to be able to sponsor pediatric faculty as visiting professors to different institutions
    2. Define the mechanisms to request that
  10. To be the liaison between the Rome foundation and other pediatric societies like NASPGHAN and ANMS
    1. Develop joint education programs and courses
    2. Develop joint research opportunities
  11. Establish a pediatric research consortium as part of Rome Foundation Research Institute
    1. Develop a network of pediatric centers/investigators
    2. Develop pediatric trials
Samuel Nurko, MD, MPH

Samuel Nurko, MD, MPH

Chair, USA

Miguel Saps, MD

Marc Benninga, Pediatric Committee

Marc Benninga, MD

Carlo DiLorenzo, MD

Anamaria Staiano, MD

Carlos Velasco, MD

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